'My Lichen Sclerosis Story' Kiki, 22

'My Lichen Sclerosis Story' Kiki, 22

Most people will have never heard of this and I had never heard of it either. But I had this for multiple years and it really really bothered me. I believe I got it when I was about 18 years old and I only got rid of it 3 years later. Not because it is so difficult to get rid of, but because I didn’t go to the doctor.

The definiton: “Lichen simplex is a localised area of chronic, lichenified eczema/dermatitis. There may be a single or multiple plaques. It is also called neurodermatitis.”

For me it was a very itchy feeling on my outer labia and around the opening of my vagina. I would scratch it on a daily base, mostly during the night, getting loose skin flakes all over my bed. I knew that if I would just stop scratching it would probably get better, but I simply couldn’t stop myself. I had tried to put Vaseline on it, because it was starting to hurt. But nothing took away the itch. I told my mom about it after I had it for over a year. She said it may be an infection and I should just take some pills for it. I tried that, but that wasn’t it. I started googling my symptoms and after searching for quite some time I finally found something that resembled what I was feeling. I was in a vicious circle of scratching and itch. I saw that you would have to see a doctor when you had it, so I finally made an appointment to have it checked. I told her my symptoms and when she inspected my vulva she confirmed that it was lichen simplex. She prescribed me a hormone cream with a strict schedule to apply it and slowly decrease the use by starting to alternate using that cream with a simple vaseline based cream. For the first time in years I had more than one night in a row where I didn’t scratch, which was such a relief. My vulva started looking much healthier as well. I did start scratching again a couple of times, but it never got back to that point of having skin flakes come off, because I would just use a new cream for a while and it would pass.

I honestly wish I would’ve gone to the doctor much earlier. I understand why many people (younger me included) do not feel comfortable going to the doctor with vaginal problems, but please trust me when I say you should really really go. They see the weirdest stuff on a daily base, and there is no need to be ashamed of looking out for your own health.

Want to share your story? Whether it feels big or small, putting it into words can be incredibly therapeutic. Plus, reading others’ experiences reminds us it’s never just us going through something!

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